2017-10-30 15:15:48 UTC

NIH Launches the All of Us Research Program

Nov. 1, 2017

AGA supports the program, which aims to gather health data from 1 million patients.

Precision medicine has been a buzzword in health care circles for years — but the National Institutes of Health (NIH) is poised to launch a major new research effort that will make it a reality. The All of Us Research Program seeks to enroll one million or more participants who will share their health information and begin a new era in medical research and treatment. This new initiative will change how the medical community, including GIs, collects and utilizes meaningful data from their peers. 

Health care providers will play a critical role in this effort. Based on our commitment to expanding participation in clinical research and increasing access to health care, AGA is excited to help spread the word about this program and ensure that our members are educated about its promise and accomplishments over time. 

Two major goals set this NIH effort apart from typical medical research. First, NIH aims to have 50 percent of participants from racial and ethnic minority communities. Second, they aim to have 75 percent of participants from groups that have been historically underrepresented in research. Achieving these goals will require significant effort to build trust, overcome barriers and work with participants as true partners in research. In GI, this data will aid research to better understand the correlation between highly prevalent GI disorders across diverse populations based on race and age. 

The All of Us Research Program is not one single health study; it will be a database that researchers can use to run thousands of health studies. The data collected can be used by any researcher in the U.S. and around the world, as long as they follow strict privacy and security rules. It is hoped that researchers will use this data to achieve a wide range of medical breakthroughs.

To learn more about the program, including what it means to be a participant, please visit https://allofus.nih.gov/

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